i was back in the hospital last night with a headache
im home now been throwing up all day been in soo much pain i was crying all after noon but i cant sleep
mums been there for me and its soo nice to have her here to help she is so great helpes me so much an i know that its not going to get eny better, eny time soon she its so good to have mum here for me when i need her the most!!!!
i wish that i could go to sleep one nidht and wake up with no pain! its hard because i cant help and do things that i would every day.
i cant go to sleep now im in way to much pain,
im one of those funny teens that like to go to school and learn hahahahahahah!!!
i miss all my friends and when i do see them i dont know what i should say to them when they ask "How are you doing? You feeling better ?"
my pain killers are helping now im on =Tramedo, Iburofen,Parmacare,Nortriptyline, Gaastro-soothe and Zopiclone (a sleeping pill) and they dont work all the time, no most of the time.
mums now eating nuts on my bed and i love them, but i dont want to throw up after having same. mum all most says if its ok so...........
untill next time jo
<3
Tuesday, November 3, 2009
Thursday, October 29, 2009
still in there
i was told that i could go home for the weekend
when i got back to the hospital i was moving to a room just for me.yay!!!!!
i had athere MRI and they seid i had a syringomyelia. mum and i went online and googled it, i was happy to find that i did have some thing, then the drs seid that the pain in my tummy was in from that so they did not know...
i got an app to see a dr feri miteff at out patients i was aloud to go home for the day and night i just had to go in and see my drs.
i saw the dr ay out patient and he seid that it was a type1 chairi malformation i was so happy we known what is wrong with me. all my drs seid sorry to me because they all seid i was making it up
after a month in hospital i now know what i have and i can let my friends know what it is
chiari malformation type 1 is the most common and i had to have surgery to fix it, my hair goes down to my bum and i have to have it cut. at do the surgery they have to get to my skull and vertebra so the spinal fliuid can flow if you wahat to konw more google CHIARI MALFORMATION or it is also known sa ARNOLD-CHIARI MALFORMATION
my pain is so bad now i am on a waiting list for surgery. i have 18 pills a today and the pain killers dont help but i has them eny way. i get pain in my shoulder, neck hips, back, headaches, balance problems, muscle weakness etc
when i got back to the hospital i was moving to a room just for me.yay!!!!!
i had athere MRI and they seid i had a syringomyelia. mum and i went online and googled it, i was happy to find that i did have some thing, then the drs seid that the pain in my tummy was in from that so they did not know...
i got an app to see a dr feri miteff at out patients i was aloud to go home for the day and night i just had to go in and see my drs.
i saw the dr ay out patient and he seid that it was a type1 chairi malformation i was so happy we known what is wrong with me. all my drs seid sorry to me because they all seid i was making it up
after a month in hospital i now know what i have and i can let my friends know what it is
chiari malformation type 1 is the most common and i had to have surgery to fix it, my hair goes down to my bum and i have to have it cut. at do the surgery they have to get to my skull and vertebra so the spinal fliuid can flow if you wahat to konw more google CHIARI MALFORMATION or it is also known sa ARNOLD-CHIARI MALFORMATION
my pain is so bad now i am on a waiting list for surgery. i have 18 pills a today and the pain killers dont help but i has them eny way. i get pain in my shoulder, neck hips, back, headaches, balance problems, muscle weakness etc
i dont know what wrong with me???
hello
my name is joanna rushton. i live in new zealand. i started to get really babd tummy pains and i went do the drs. he seid that it was a UTI so he give me same drugs and sent me on my way.
a week later he asked me to came back in so i did. he seid that the pills he had given me would not help for the bug i had so he give me some different pills.
a week after that i was still in alot of pain and i feet like it wasnt geting bettar at all so mum and i went back.
my dr sent me to the hospital. i had an xray, blood tests, piss tests, some tests im not going to say (it was not very nice at all) and they still did not know what was wrong with me, all the pain killers werent working and i was in so much pain. mum did not know what to do my best friend came up to see me. there was a girl and her mum keeped looking at me so mum went down to talk to them. katey 16 years old just like me, she had pain in hea tummy too. atfer the day went on they put me up in a room, an old room, it was so old even the people in the rooom was old, there was 8 beds and all the people that were there were old, michael my boyfriend went home at 8pm ish. i fall asleep and mum wait to see a dr.
day 1or 2 : katey was put in the bed in front of me and we started to get to know one and other she going to tgc (a girls only school),i go at a mixed school or we call it oats. we became friends. mum was all ways there,i don tlike hospitals. we did not have loos for the room we had to use the same ones as all the oldder people!:( there was a older man that didnt put pants on and would play with himself every time katey and i would walk passed! :( :'( it aws not very nice at all
after about a week or so of blood tests and all kinds of different drs, i had a MRI ................and ther was something in it however the drs did not think it was what the pain was coming from. katey went home after a bit so it was just me and mum, not for long....
i went to sleep in the day went michael was it school or at work, i had not been sleeping well. i had been moved and did not like that to all! they seid that they moved me so they could come when i called the bell faster, i say to the dr that i feet like one no throut that i was in pain and that i was makong it all up, it toke them longger that befor.
one day when i wake up or got woken up by some people next to me, i was so mad but i never seid eny thing. i was in a room with old people and the people that worked there was not very nice at all so i did not want so say eny thing. her name is lynda and she is 28 years old. so nice and friendly, shes a teacher, i asked her what happened she had something wrong with her hips and every thing, she seid "i was in a road acc" lynda didnt want to tall me so i didnt ask.
in the hospital for three weeks and the drs didnt know what was up with me.....................
my name is joanna rushton. i live in new zealand. i started to get really babd tummy pains and i went do the drs. he seid that it was a UTI so he give me same drugs and sent me on my way.
a week later he asked me to came back in so i did. he seid that the pills he had given me would not help for the bug i had so he give me some different pills.
a week after that i was still in alot of pain and i feet like it wasnt geting bettar at all so mum and i went back.
my dr sent me to the hospital. i had an xray, blood tests, piss tests, some tests im not going to say (it was not very nice at all) and they still did not know what was wrong with me, all the pain killers werent working and i was in so much pain. mum did not know what to do my best friend came up to see me. there was a girl and her mum keeped looking at me so mum went down to talk to them. katey 16 years old just like me, she had pain in hea tummy too. atfer the day went on they put me up in a room, an old room, it was so old even the people in the rooom was old, there was 8 beds and all the people that were there were old, michael my boyfriend went home at 8pm ish. i fall asleep and mum wait to see a dr.
day 1or 2 : katey was put in the bed in front of me and we started to get to know one and other she going to tgc (a girls only school),i go at a mixed school or we call it oats. we became friends. mum was all ways there,i don tlike hospitals. we did not have loos for the room we had to use the same ones as all the oldder people!:( there was a older man that didnt put pants on and would play with himself every time katey and i would walk passed! :( :'( it aws not very nice at all
after about a week or so of blood tests and all kinds of different drs, i had a MRI ................and ther was something in it however the drs did not think it was what the pain was coming from. katey went home after a bit so it was just me and mum, not for long....
i went to sleep in the day went michael was it school or at work, i had not been sleeping well. i had been moved and did not like that to all! they seid that they moved me so they could come when i called the bell faster, i say to the dr that i feet like one no throut that i was in pain and that i was makong it all up, it toke them longger that befor.
one day when i wake up or got woken up by some people next to me, i was so mad but i never seid eny thing. i was in a room with old people and the people that worked there was not very nice at all so i did not want so say eny thing. her name is lynda and she is 28 years old. so nice and friendly, shes a teacher, i asked her what happened she had something wrong with her hips and every thing, she seid "i was in a road acc" lynda didnt want to tall me so i didnt ask.
in the hospital for three weeks and the drs didnt know what was up with me.....................
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